duchenneawareness

▶️ Watch on 3Speak This is our second accessible playground review and we kind of had high hopes for it. We'd been told that the recentl...

▶️ Watch on 3Speak If you've followed my account at all, you'll know that I'm all about helping people to understand Duchenne muscular d...

▶️ Watch on 3Speak My son was diagnosed with Duchenne muscular dystrophy nearly 3 years ago and in recent times, I've begun to notice th...

A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal ...

It’s been some time since my last post where I outlined my plans to run an awareness raiser so that more people can learn about Duchenne ...

▶️ Watch on 3Speak 🌟 Join Me in Making a Difference! 🌟 That’s right! You haven’t watched wrong! I’m going to be walking 79km on the 7th ...

A couple of posts ago, I wrote about my son's recent school camp and how it was noticeably more difficult for him this year, than last y...

Cough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne muscula...

Outside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just in pas...

One of the many problems with a muscle-wasting condition is that you can't always see the regression happening. Kind of like how your ha...

When dealing with a condition such as Duchenne muscular dystrophy, where muscles regress, it's really important that you look beyond the...

I wrote a week ago about my son's upcoming camp and how I hope, despite his condition, that he enjoys it as much as I used to enjoy scho...

I remember school camps as exciting events. A chance to let your hair down and escape the confines of overbearing parents and jump strai...

This week we've been lucky enough to be a part of Walk for Duchenne, an awareness (and fund) raising initiative spearheaded by Save Our ...

One of the problems with being human is that we don't always see eye to eye. In the process of living life, we forget that we're not liv...

Sometimes life has a way of pulling us down. It can quickly and easily overwhelm and crush the spirit. For a long time, I've been a firm...

▶️ Watch on 3Speak Launching 15.02.2024 ▶️ 3Speak

A lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to ju...

Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick ...

I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall...

▶️ Watch on 3Speak Unfortunately for long term steroid users, bones can quickly become weak, and for a child with Duchenne muscular dest...

A few weeks ago my daughter came home from school with a worksheet that contained basic shapes such as a circle, rectangle, square and o...

This is the third post in this series, please read the first two posts before continuing. You can find Part One here: 10,372 - Part One,...

This is the second post in this series, please read the first post before continuing. You can find it here: 10,372 - Part One. Our frust...

I wrote a post a short time ago titled What is DMD in which I explained, as best I could, a little about the DMD diagnosis process and w...

This may not be a traditional education post, however, it is educational in nature, so I hope it's okay to put it in this community. In ...

Alexander Zabrodskiy A couple of weeks ago, Dominic had his second bone density infusion. The purpose behind these infusions is to help ...

As we spend more time living with a child with Duchenne muscular dystrophy, we constantly become more aware of exactly what living with ...

If you've read, or watched, any of my other posts, you'll know that my son was diagnosed with Duchenne muscular dystrophy (DMD) last yea...

▶️ Watch on 3Speak A video that skips from idea to idea a little, however, the primary focus is the idea that a child with DMD is diffic...